Consequences of rare diagnoses for education and daily life: development of an observation instrument

BACKGROUND: Ågrenska, a Swedish national centre for rare diagnoses and health conditions, has arranged courses for families of children with rare diagnoses for over thirty years, and has experienced that the conditions often have complex and varying consequences in the children´s everyday lives, not...

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Detalles Bibliográficos
Autores principales: Jaeger, Gunilla, Röjvik, AnnCatrin, Hjelmquist, Erland, Hansla, André, Falkman, Kerstin W.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9004121/
https://www.ncbi.nlm.nih.gov/pubmed/35413929
http://dx.doi.org/10.1186/s13023-022-02303-y

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9004121/
https://www.ncbi.nlm.nih.gov/pubmed/35413929
http://dx.doi.org/10.1186/s13023-022-02303-y

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