Development of the Clinical Gestalt Assessment: a visual clinical global impression scale for Proteus syndrome

BACKGROUND: Clinical outcome assessments are important tools for measuring the natural history of disease and efficacy of an intervention. The heterogenous phenotype and difficult to quantity features of Proteus syndrome present challenges to measuring clinical outcomes. To address these, we designe...

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Detalles Bibliográficos
Autores principales: Ours, Christopher A., Hodges, Mia B., Oden, Neal, Sapp, Julie C., Biesecker, Leslie G.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9034583/
https://www.ncbi.nlm.nih.gov/pubmed/35461279
http://dx.doi.org/10.1186/s13023-022-02325-6

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9034583/
https://www.ncbi.nlm.nih.gov/pubmed/35461279
http://dx.doi.org/10.1186/s13023-022-02325-6

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