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Improving Recruitment for a Newborn Screening Pilot Study with Adaptations in Response to the COVID-19 Pandemic

Seven months after the launch of a pilot study to screen newborns for Duchenne Muscular Dystrophy (DMD) in New York State, New York City became an epicenter of the coronavirus disease 2019 (COVID-19) pandemic. All in-person research activities were suspended at the study enrollment institutions of N...

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Detalles Bibliográficos
Autores principales: Wynn, Julia, Tavakoli, Norma P., Armstrong, Niki, Gomez, Jacqueline, Koval, Carrie, Lai, Christina, Tang, Stephanie, Quevedo Prince, Andrea, Quevedo, Yeyson, Rufino, Katrina, Palacio Morales, Laura, Pena, Angela, Grossman, Sharon, Monfiletto, Mary, Ruda, Erika, Jimenez, Vania, Verdade, Lorraine, Jones, Ashley, Barriga, Michelle G., Karan, Nandanee, Puma, Alexandria, Sarker, Safa, Chin, Sarah, Duarte, Kelly, Tegay, David H., Bacchus, Irzaud, Julooru, Rajani, Maloney, Breanne, Park, Sunju, Saami, Akilan M., Cohen, Lilian, Shapiro, Natasha, Caggana, Michele, Chung, Wendy K., Gruber, Dorota
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9036248/
https://www.ncbi.nlm.nih.gov/pubmed/35466194
http://dx.doi.org/10.3390/ijns8020023