What can data trusts for health research learn from participatory governance in biobanks?

New models of data governance for health data are a focus of growing interest in an era of challenge to the social licence. In this article, we reflect on what the data trust model, which is founded on principles of participatory governance, can learn from experiences of involving and engagement of...

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Detalles Bibliográficos
Autores principales: Milne, Richard, Sorbie, Annie, Dixon-Woods, Mary
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2022
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9046739/
https://www.ncbi.nlm.nih.gov/pubmed/33741681
http://dx.doi.org/10.1136/medethics-2020-107020

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9046739/
https://www.ncbi.nlm.nih.gov/pubmed/33741681
http://dx.doi.org/10.1136/medethics-2020-107020

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