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What can data trusts for health research learn from participatory governance in biobanks?
New models of data governance for health data are a focus of growing interest in an era of challenge to the social licence. In this article, we reflect on what the data trust model, which is founded on principles of participatory governance, can learn from experiences of involving and engagement of...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BMJ Publishing Group
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9046739/ https://www.ncbi.nlm.nih.gov/pubmed/33741681 http://dx.doi.org/10.1136/medethics-2020-107020 |