Capturing the experiences of patients with inherited optic neuropathies: a systematic review of patient-reported outcome measures (PROMs) and qualitative studies

PURPOSE: To identify and comprehensively evaluate studies capturing the experience of individuals affected by an inherited optic neuropathy (ION), focusing on patient-reported outcome measures (PROMs) and qualitative studies where the health status and quality of life (QoL) of these individuals have...

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Detalles Bibliográficos
Autores principales: Chen, Benson S., Galus, Tomasz, Archer, Stephanie, Tadić, Valerija, Horton, Mike, Pesudovs, Konrad, Braithwaite, Tasanee, Yu-Wai-Man, Patrick
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2022
Materias:
Neurophthalmology
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9061690/
https://www.ncbi.nlm.nih.gov/pubmed/35024911
http://dx.doi.org/10.1007/s00417-021-05534-0

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9061690/
https://www.ncbi.nlm.nih.gov/pubmed/35024911
http://dx.doi.org/10.1007/s00417-021-05534-0

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