Cargando…

Capturing the experiences of patients with inherited optic neuropathies: a systematic review of patient-reported outcome measures (PROMs) and qualitative studies

PURPOSE: To identify and comprehensively evaluate studies capturing the experience of individuals affected by an inherited optic neuropathy (ION), focusing on patient-reported outcome measures (PROMs) and qualitative studies where the health status and quality of life (QoL) of these individuals have...

Descripción completa

Detalles Bibliográficos
Autores principales:	Chen, Benson S., Galus, Tomasz, Archer, Stephanie, Tadić, Valerija, Horton, Mike, Pesudovs, Konrad, Braithwaite, Tasanee, Yu-Wai-Man, Patrick
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer Berlin Heidelberg 2022
Materias:	Neurophthalmology
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9061690/ https://www.ncbi.nlm.nih.gov/pubmed/35024911 http://dx.doi.org/10.1007/s00417-021-05534-0

Ejemplares similares

The retinal vasculature pathophysiological changes in vision recovery after treatment for indirect traumatic optic neuropathy patients
por: Gao, Yang, et al.
Publicado: (2021)

Automated macular segmentation can distinguish glaucomatous from compressive optic neuropathy
por: Soares, Ricardo Machado, et al.
Publicado: (2023)

Evaluation of peripapillary vascular flow in patients with Thyroid-Associated Ophthalmopathy (TAO) by OCT Angiography
por: Del Noce, Chiara, et al.
Publicado: (2022)

Autonomic dysfunction detection by an automatic pupillometer as a non-invasive test in patients recovered from COVID-19
por: Karahan, Mine, et al.
Publicado: (2021)

Elongation of the inferior rectus tendon with fascia lata graft for large vertical squint angles in patients with Graves’ orbitopathy
por: Prinz, Julia, et al.
Publicado: (2022)

Do dissociated or associated phoria predict the comfortable prism?
por: Otto, Joanna M. N., et al.
Publicado: (2008)

Evaluation of contrast sensitivity measurements after retrobulbar optic neuritis in Multiple Sclerosis
por: Owidzka, Marta, et al.
Publicado: (2014)

Sectoral analysis of the retinal nerve fiber layer thinning and its association with visual field loss in homonymous hemianopia caused by post-geniculate lesions using spectral-domain optical coherence tomography
por: Goto, Katsutoshi, et al.
Publicado: (2015)

Tendon elongation with bovine pericardium in strabismus surgery—indications beyond Graves’ orbitopathy
por: Hedergott, Andrea, et al.
Publicado: (2020)

Optic neuritis in German children: clinical findings and association with multiple sclerosis
por: Tonagel, Felix, et al.
Publicado: (2020)

Characteristics of peripapillary retinal nerve fiber layer atrophy in glaucoma, optic nerve sheath meningioma, and sphenoid wing meningioma
por: Tonagel, Felix, et al.
Publicado: (2021)

How lesions at different locations along the visual pathway influence pupillary reactions to chromatic stimuli
por: Kelbsch, Carina, et al.
Publicado: (2021)

How do ophthalmologists manage functional visual symptoms? A UK survey of ophthalmologists’ experience
por: Laginaf, Masara, et al.
Publicado: (2021)

Ocular motility disorders following coronavirus disease-19 vaccination
por: Park, Kyung-Ah, et al.
Publicado: (2022)

Yearly changes in cases of acute acquired comitant esotropia during a 12-year period
por: Okita, Yoichi, et al.
Publicado: (2023)

Central retina plays a decisive role in the suppression of pupillary escape
por: Kelbsch, Carina, et al.
Publicado: (2023)

Evaluating patient-reported outcome measures (PROMs) for future clinical trials in adult patients with optic neuritis
por: Panthagani, Jesse, et al.
Publicado: (2023)

Evaluating patient-reported outcome measures (PROMs) for clinical trials and clinical practice in adult patients with uveitis or scleritis: a systematic review
por: O’Donovan, Charles, et al.
Publicado: (2022)

The use of patient-reported outcome research in modern ophthalmology: impact on clinical trials and routine clinical practice
por: Braithwaite, Tasanee, et al.
Publicado: (2019)

Psychometric Validity of the Visual Function Index in Leber Hereditary Optic Neuropathy
por: Chen, Benson S., et al.
Publicado: (2023)

Inherited mitochondrial optic neuropathies
por: Yu-Wai-Man, P, et al.
Publicado: (2009)

From Transcriptomics to Treatment in Inherited Optic Neuropathies
por: Gilhooley, Michael James, et al.
Publicado: (2021)

Development and application of the ocular immune-mediated inflammatory diseases ontology enhanced with synonyms from online patient support forum conversation
por: Pendleton, Samantha C., et al.
Publicado: (2021)

P28 Multi-system and cavernous sinus inflammatory syndrome presenting with evolving multiple cranial neuropathies following zoledronate infusion
por: Kanwar, Tavishi, et al.
Publicado: (2021)

Clinical Characteristics and Genetic Variants in Taiwanese Patients With PROM1-Related Inherited Retinal Disorders
por: Lin, Tzu-Yi, et al.
Publicado: (2023)

Treatment strategies for inherited optic neuropathies: past, present and future
por: Yu-Wai-Man, P, et al.
Publicado: (2014)

Patient‐reported outcome measures ( PROMs): making sense of individual PROM scores and changes in PROM scores over time
por: van der Willik, Esmee M., et al.
Publicado: (2020)

Patient-centred measurement in ophthalmology – a paradigm shift
por: Pesudovs, Konrad
Publicado: (2006)

Classification and diagnosis of the inherited neuropathies
por: Reilly, Mary M.
Publicado: (2009)

On the sensitivity of PROMs during breast radiotherapy
por: Heilemann, Gerd, et al.
Publicado: (2022)

Qualitative analysis of patients’ feedback from a PROMs survey of cancer patients in England
por: Corner, Jessica, et al.
Publicado: (2013)

Vision Loss from Atypical Optic Neuritis: Patient and Physician Perspectives
por: Braithwaite, Tasanee, et al.
Publicado: (2020)

Defects in Axonal Transport in Inherited Neuropathies
por: Beijer, Danique, et al.
Publicado: (2019)

Genetic Spectrum of Inherited Neuropathies in India
por: Sharma, Shivani, et al.
Publicado: (2022)

Addressing Missing Data in Patient‐Reported Outcome Measures (PROMS): Implications for the Use of PROMS for Comparing Provider Performance
por: Gomes, Manuel, et al.
Publicado: (2015)

Developments in the Treatment of Leber Hereditary Optic Neuropathy
por: Chen, Benson S., et al.
Publicado: (2022)

A catalogue of PROMs in sports science: Quality assessment of PROM development and validation
por: Hansen, Christian F., et al.
Publicado: (2021)

Implications of the artificial intelligence extensions to the guidelines for consolidated standards of reporting trials and for standard protocol item recommendations for interventional trials (the CONSORT-AI and SPIRIT-AI extensions)
por: Solebo, Ameenat Lola, et al.
Publicado: (2020)

Uses and Abuses of Patient Reported Outcome Measures (PROMs): Potential Iatrogenic Impact of PROMs Implementation and How It Can Be Mitigated
por: Wolpert, Miranda
Publicado: (2013)

Use of patient-reported outcome measures (PROMs) in clinical diabetes consultations: the DiaPROM randomised controlled pilot trial
por: Hernar, Ingvild, et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_j1861ekatcrs52mnno2s7gtf2t