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Qualitative study to characterize patient experience and relevance of patient-reported outcome measures for patients with metastatic synovial sarcoma

BACKGROUND: The outlook for patients with metastatic synovial sarcoma (mSS) is poor. Better understanding of patient experience in this setting, beyond clinical measures, may guide improvements in management. Validated patient-reported outcome (PRO) instruments specific to many types of cancer exist...

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Detalles Bibliográficos
Autores principales: Eliason, Laurie, Grant, Laura, Francis, Anya, Cardellino, Anna, Culver, Ken, Chawla, Sant P., Arbuckle, Rob, Pokras, Shibani
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9068846/
https://www.ncbi.nlm.nih.gov/pubmed/35507231
http://dx.doi.org/10.1186/s41687-022-00450-1