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Qualitative study to characterize patient experience and relevance of patient-reported outcome measures for patients with metastatic synovial sarcoma
BACKGROUND: The outlook for patients with metastatic synovial sarcoma (mSS) is poor. Better understanding of patient experience in this setting, beyond clinical measures, may guide improvements in management. Validated patient-reported outcome (PRO) instruments specific to many types of cancer exist...
Autores principales: | Eliason, Laurie, Grant, Laura, Francis, Anya, Cardellino, Anna, Culver, Ken, Chawla, Sant P., Arbuckle, Rob, Pokras, Shibani |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9068846/ https://www.ncbi.nlm.nih.gov/pubmed/35507231 http://dx.doi.org/10.1186/s41687-022-00450-1 |
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