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Beyond the clinical context: the process of losing oneself living with Huntington’s disease

BACKGROUND: People with Huntington's disease (HD) have increased functional and cognitive dependence. While numerous clinical, genetic, and therapeutic management studies have been carried out, few studies have investigated the disease from the personal experience and the context of people livi...

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Detalles Bibliográficos
Autores principales: Varela, Luz-Estella, Arias, María-Mercedes, Martorell-Poveda, María-Antonia, Giraldo, Clara V., Estrada-Acuña, Rosa A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9077866/
https://www.ncbi.nlm.nih.gov/pubmed/35526033
http://dx.doi.org/10.1186/s13023-022-02330-9