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Beyond the clinical context: the process of losing oneself living with Huntington’s disease
BACKGROUND: People with Huntington's disease (HD) have increased functional and cognitive dependence. While numerous clinical, genetic, and therapeutic management studies have been carried out, few studies have investigated the disease from the personal experience and the context of people livi...
Autores principales: | Varela, Luz-Estella, Arias, María-Mercedes, Martorell-Poveda, María-Antonia, Giraldo, Clara V., Estrada-Acuña, Rosa A. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9077866/ https://www.ncbi.nlm.nih.gov/pubmed/35526033 http://dx.doi.org/10.1186/s13023-022-02330-9 |
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