Codesigning a community-based participatory research project to assess tribal perspectives on privacy and health data sharing: A report from the Strong Heart Study

Broad health data sharing raises myriad ethical issues related to data protection and privacy. These issues are of particular relevance to Native Americans, who reserve distinct individual and collective rights to control data about their communities. We sought to gather input from tribal community...

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Detalles Bibliográficos
Autores principales: Triplett, Cynthia, Fletcher, Burgundy J, Taitingfong, Riley I, Zhang, Ying, Ali, Tauqeer, Ohno-Machado, Lucila, Bloss, Cinnamon S
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2022
Materias:
Perspective
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9093024/
https://www.ncbi.nlm.nih.gov/pubmed/35349678
http://dx.doi.org/10.1093/jamia/ocac038

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9093024/
https://www.ncbi.nlm.nih.gov/pubmed/35349678
http://dx.doi.org/10.1093/jamia/ocac038

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