Healthcare access, satisfaction, and health-related quality of life among children and adults with rare diseases

BACKGROUND: Research in a variety of countries indicates that healthcare access and health-related quality of life are challenged among people with a variety of rare diseases (RDs). However, there has been little systematic research on the experiences of children and adults with RDs in the American...

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Detalles Bibliográficos
Autores principales: Bogart, Kathleen, Hemmesch, Amanda, Barnes, Erica, Blissenbach, Thomas, Beisang, Arthur, Engel, Patti
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9096775/
https://www.ncbi.nlm.nih.gov/pubmed/35549731
http://dx.doi.org/10.1186/s13023-022-02343-4

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9096775/
https://www.ncbi.nlm.nih.gov/pubmed/35549731
http://dx.doi.org/10.1186/s13023-022-02343-4

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