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Healthcare access, satisfaction, and health-related quality of life among children and adults with rare diseases
BACKGROUND: Research in a variety of countries indicates that healthcare access and health-related quality of life are challenged among people with a variety of rare diseases (RDs). However, there has been little systematic research on the experiences of children and adults with RDs in the American...
| Autores principales: | , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9096775/ https://www.ncbi.nlm.nih.gov/pubmed/35549731 http://dx.doi.org/10.1186/s13023-022-02343-4 |