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Advance care planning in amyotrophic lateral sclerosis (ALS): study protocol for a qualitative longitudinal study with persons with ALS and their family carers

INTRODUCTION: Amyotrophic lateral sclerosis (ALS) is an incurable motor neuron degenerative disease that has rapid progression and is associated with cognitive impairment. For people with ALS (pALS) and their family carers, advance care planning (ACP) is beneficial, as it can lead to feelings of con...

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Detalles Bibliográficos
Autores principales: Vandenbogaerde, Isabel, Miranda, Rose, De Bleecker, Jan L, Carduff, Emma, van der Heide, Agnes, Van den Block, Lieve, Deliens, Luc, De Vleminck, Aline
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9109106/
https://www.ncbi.nlm.nih.gov/pubmed/35551085
http://dx.doi.org/10.1136/bmjopen-2021-060451