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Living with a genetic, undiagnosed or rare disease: A longitudinal journalling study through the COVID‐19 pandemic
INTRODUCTION: COVID‐19 changed the way we lived with uncertainty from the outset as the pandemic impacted every aspect of our lives from well‐being, socializing to accessing healthcare. For people in vulnerable populations, such as those with genetic, undiagnosed and rare disorders, the experience w...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
John Wiley and Sons Inc.
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9111564/ https://www.ncbi.nlm.nih.gov/pubmed/35122367 http://dx.doi.org/10.1111/hex.13405 |