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Education and Consent for Population-Based DNA Screening: A Mixed-Methods Evaluation of the Early Check Newborn Screening Pilot Study

A challenge in implementing population-based DNA screening is providing sufficient information, that is, understandable and acceptable, and that supports informed decision making. Early Check is an expanded newborn screening study offered to mothers/guardians whose infants have standard newborn scre...

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Podrobná bibliografie
Hlavní autoři: Peay, Holly L., Gwaltney, Angela You, Moultrie, Rebecca, Cope, Heidi, Boyea, Beth Lincoln‐, Porter, Katherine Ackerman, Duparc, Martin, Alexander, Amir A., Biesecker, Barbara B., Isiaq, Aminah, Check, Jennifer, Gehtland, Lisa, Bailey, Donald B., King, Nancy M. P.
Médium: Online Článek Text
Jazyk:English
Vydáno: Frontiers Media S.A. 2022
Témata:
On-line přístup:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9133477/
https://www.ncbi.nlm.nih.gov/pubmed/35646095
http://dx.doi.org/10.3389/fgene.2022.891592