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Education and Consent for Population-Based DNA Screening: A Mixed-Methods Evaluation of the Early Check Newborn Screening Pilot Study

A challenge in implementing population-based DNA screening is providing sufficient information, that is, understandable and acceptable, and that supports informed decision making. Early Check is an expanded newborn screening study offered to mothers/guardians whose infants have standard newborn scre...

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Detalhes bibliográficos
Autores principales: Peay, Holly L., Gwaltney, Angela You, Moultrie, Rebecca, Cope, Heidi, Boyea, Beth Lincoln‐, Porter, Katherine Ackerman, Duparc, Martin, Alexander, Amir A., Biesecker, Barbara B., Isiaq, Aminah, Check, Jennifer, Gehtland, Lisa, Bailey, Donald B., King, Nancy M. P.
Formato: Online Artigo Texto
Idioma:English
Publicado em: Frontiers Media S.A. 2022
Assuntos:
Acesso em linha:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9133477/
https://www.ncbi.nlm.nih.gov/pubmed/35646095
http://dx.doi.org/10.3389/fgene.2022.891592