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The Transition to Adulthood for Youth Living with Rare Diseases

More children with rare diseases survive into adulthood. The transition period to adult healthcare presents many challenges for pediatric rare diseases. Few adolescents or their families receive any transitional support for the transition to adult healthcare or for their maturing psychosocial needs....

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Detalles Bibliográficos
Autores principales: Sandquist, Melanie, Davenport, TjaMeika, Monaco, Jana, Lyon, Maureen E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9139297/
https://www.ncbi.nlm.nih.gov/pubmed/35626888
http://dx.doi.org/10.3390/children9050710