Unmet Needs of Parents of Children with Urea Cycle Disorders

(1) Background: Phenotypic diversity and long-term health outcomes of individuals with urea cycle disorders (UCDs) have been described in detail. However, there is limited information on the burden on affected families. (2) Methods: To evaluate the family burden in parents with children suffering fr...

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Detalles Bibliográficos
Autores principales: Scharping, Mara, Brennenstuhl, Heiko, Garbade, Sven F., Wild, Beate, Posset, Roland, Zielonka, Matthias, Kölker, Stefan, Haun, Markus W., Opladen, Thomas
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9140128/
https://www.ncbi.nlm.nih.gov/pubmed/35626889
http://dx.doi.org/10.3390/children9050712

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9140128/
https://www.ncbi.nlm.nih.gov/pubmed/35626889
http://dx.doi.org/10.3390/children9050712

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