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Routine management, healthcare resource use and patient and carer‐reported outcomes of patients with transfusion‐dependent β‐thalassaemia in the United Kingdom: A mixed methods observational study

OBJECTIVES: We evaluated routine healthcare management, clinical status and patient‐ and carer‐reported outcomes in UK paediatric and adult patients with transfusion‐dependent β‐thalassaemia (TDT). METHODS: A multi‐centre, observational mixed‐methodology study evaluated 165 patients (50% male; media...

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Detalles Bibliográficos
Autores principales: Shah, Farrukh, Telfer, Paul, Velangi, Mark, Pancham, Shivan, Wynn, Robert, Pollard, Sally, Chalmers, Elizabeth, Kell, Jonathan, Carter, Angela M., Hickey, Joe, Paramore, Clark, Jobanputra, Minesh, Ryan, Kate
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9175788/
https://www.ncbi.nlm.nih.gov/pubmed/35845207
http://dx.doi.org/10.1002/jha2.282