Burden Among Caregivers of Pediatric Patients with Neurofibromatosis Type 1 (NF1) and Plexiform Neurofibroma (PN) in the United States: A Cross-Sectional Study

INTRODUCTION: Patients with neurofibromatosis type 1 (NF1) may develop plexiform neurofibromas (PNs) that can cause disfigurement, pain, and dysfunction, and may even be life-threatening. Studies have indicated NF1-PN can substantially impact the quality of life (QoL) of pediatric patients. However,...

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Detalles Bibliográficos
Autores principales: Yang, Xiaoqin, Yoo, Hyun Kyoo, Amin, Suvina, Cheng, Wendy Y., Sundaresan, Sanjana, Zhang, Lujia, Duh, Mei S.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2022
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9178532/
https://www.ncbi.nlm.nih.gov/pubmed/35679001
http://dx.doi.org/10.1007/s40120-022-00365-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9178532/
https://www.ncbi.nlm.nih.gov/pubmed/35679001
http://dx.doi.org/10.1007/s40120-022-00365-5

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