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Writing the worlds of genomic medicine: experiences of using participatory-writing to understand life with rare conditions
The diagnostic and treatment possibilities made possible by the development and subsequent mainstreaming of clinical genomics services have the potential to profoundly change the experiences of families affected by rare genetic conditions. Understanding the potentials of genomic medicine requires th...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2022
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9185826/ https://www.ncbi.nlm.nih.gov/pubmed/35418508 http://dx.doi.org/10.1136/medhum-2021-012346 |