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Writing the worlds of genomic medicine: experiences of using participatory-writing to understand life with rare conditions

The diagnostic and treatment possibilities made possible by the development and subsequent mainstreaming of clinical genomics services have the potential to profoundly change the experiences of families affected by rare genetic conditions. Understanding the potentials of genomic medicine requires th...

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Detalles Bibliográficos
Autores principales: Gorman, Richard, Farsides, Bobbie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9185826/
https://www.ncbi.nlm.nih.gov/pubmed/35418508
http://dx.doi.org/10.1136/medhum-2021-012346