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Setting international standards for patient and parent involvement and engagement in childhood, adolescent and young adult cancer research: A report from a European Collaborative Workshop

BACKGROUND: Patient and Public Involvement and Engagement (PPIE) in research, advocates for research conducted ‘with’ not ‘for’ the affected population. In paediatric oncology research, the parents of children, adolescents and young adults affected by cancer are represented by the term ‘public’ in t...

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Detalles Bibliográficos
Autores principales: Polanco, Angela, Al‐Saadi, Reem, Tugnait, Suzanne, Scobie, Nicole, Pritchard‐Jones, Kathy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9199507/
https://www.ncbi.nlm.nih.gov/pubmed/34383382
http://dx.doi.org/10.1002/cnr2.1523