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The diagnostic odyssey: insights from parents of children living with an undiagnosed condition
BACKGROUND: People living with rare disease often have protracted journeys towards diagnosis. In the last decade, programs have arisen around the world that are dedicated to ending this ‘diagnostic odyssey’, including the Undiagnosed Diseases Program Western Australia (UDP-WA), which has a focus on...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9206122/ https://www.ncbi.nlm.nih.gov/pubmed/35717227 http://dx.doi.org/10.1186/s13023-022-02358-x |