Overcoming therapeutic nihilism. Breaking bad news of amyotrophic lateral sclerosis—a patient-centred perspective in rare diseases

Amyotrophic lateral sclerosis (ALS) is a rare, incurable, and fatal neurodegenerative disease with median survival time from onset to death ranging from 20 to 48 months. Breaking bad news about ALS diagnosis is a challenging task for physicians and a life-changing experience for patients. Several pr...

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Detalles Bibliográficos
Autores principales: Maksymowicz, Stanisław, Libura, Maria, Malarkiewicz, Paulina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2022
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9213364/
https://www.ncbi.nlm.nih.gov/pubmed/35149928
http://dx.doi.org/10.1007/s10072-022-05931-1

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9213364/
https://www.ncbi.nlm.nih.gov/pubmed/35149928
http://dx.doi.org/10.1007/s10072-022-05931-1

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