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Valuing the “Burden” and Impact of Rare Diseases: A Scoping Review
Introduction: Rare diseases (RDs) are a severe, chronic, degenerative and often life-threatening group of conditions affecting more than 30 million people in Europe. Their impact is often underreported and ranges from psychological and physical symptoms seriously compromising quality of life. There...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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Frontiers Media S.A.
2022
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9213803/ https://www.ncbi.nlm.nih.gov/pubmed/35754469 http://dx.doi.org/10.3389/fphar.2022.914338 |