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Valuing the “Burden” and Impact of Rare Diseases: A Scoping Review

Introduction: Rare diseases (RDs) are a severe, chronic, degenerative and often life-threatening group of conditions affecting more than 30 million people in Europe. Their impact is often underreported and ranges from psychological and physical symptoms seriously compromising quality of life. There...

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Detalles Bibliográficos
Autores principales: Delaye, Julien, Cacciatore, Pasquale, Kole, Anna
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9213803/
https://www.ncbi.nlm.nih.gov/pubmed/35754469
http://dx.doi.org/10.3389/fphar.2022.914338