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Healthcare Burden of Rare Diseases: A Population-Based Study in Tuscany (Italy)

Patients with rare diseases (RDs) need tailored, continuous, and multidisciplinary hospital care. This retrospective cohort study aimed to analyse the healthcare burden of RD patients using a multi-database approach, by linking the data of the Rare Diseases Registry of Tuscany with the regional hosp...

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Detalles Bibliográficos
Autores principales: Baldacci, Silvia, Santoro, Michele, Pierini, Anna, Mezzasalma, Lorena, Gorini, Francesca, Coi, Alessio
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9265803/
https://www.ncbi.nlm.nih.gov/pubmed/35805212
http://dx.doi.org/10.3390/ijerph19137553