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Healthcare Burden of Rare Diseases: A Population-Based Study in Tuscany (Italy)
Patients with rare diseases (RDs) need tailored, continuous, and multidisciplinary hospital care. This retrospective cohort study aimed to analyse the healthcare burden of RD patients using a multi-database approach, by linking the data of the Rare Diseases Registry of Tuscany with the regional hosp...
Autores principales: | Baldacci, Silvia, Santoro, Michele, Pierini, Anna, Mezzasalma, Lorena, Gorini, Francesca, Coi, Alessio |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9265803/ https://www.ncbi.nlm.nih.gov/pubmed/35805212 http://dx.doi.org/10.3390/ijerph19137553 |
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