Quality of life (QoL) for people with primary sclerosing cholangitis (PSC): a pragmatic strategy for identifying relevant QoL issues for rare disease

BACKGROUND: Primary sclerosing cholangitis (PSC) is a rare incurable disease of the bile ducts and liver which can significantly impair quality of life (QoL). No existing QoL tools are entirely suitable for people living with PSC (PwPSC). We aimed to develop a measure of QoL for PwPSC in the UK, beg...

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Detalles Bibliográficos
Autores principales: Marcus, Elena, Stone, Patrick, Thorburn, Douglas, Walmsley, Martine, Vivat, Bella
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9287498/
https://www.ncbi.nlm.nih.gov/pubmed/35840704
http://dx.doi.org/10.1186/s41687-022-00484-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9287498/
https://www.ncbi.nlm.nih.gov/pubmed/35840704
http://dx.doi.org/10.1186/s41687-022-00484-5

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