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Factors affecting pathways to care for children and adolescents with complex vascular malformations: parental perspectives

BACKGROUND: Complex vascular malformations (VMs) are rare disorders that can cause pain, coagulopathy, disfigurement, asymmetric growth, and disability. Patients with complex VMs experience misdiagnosis, delayed diagnosis, delayed or inappropriate treatments, and worsened health. Given the potential...

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Detalles Bibliográficos
Autores principales: Sisk, Bryan A., Kerr, Anna, King, Katherine A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9287854/
https://www.ncbi.nlm.nih.gov/pubmed/35840977
http://dx.doi.org/10.1186/s13023-022-02432-4