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Factors affecting pathways to care for children and adolescents with complex vascular malformations: parental perspectives
BACKGROUND: Complex vascular malformations (VMs) are rare disorders that can cause pain, coagulopathy, disfigurement, asymmetric growth, and disability. Patients with complex VMs experience misdiagnosis, delayed diagnosis, delayed or inappropriate treatments, and worsened health. Given the potential...
Autores principales: | Sisk, Bryan A., Kerr, Anna, King, Katherine A. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9287854/ https://www.ncbi.nlm.nih.gov/pubmed/35840977 http://dx.doi.org/10.1186/s13023-022-02432-4 |
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