Parents as informal caregivers of children and adolescents with spinal muscular atrophy: a systematic review of quantitative and qualitative data on the psychosocial situation, caregiver burden, and family needs

BACKGROUND: Spinal muscular atrophy (SMA) is a rare degenerative neuromuscular disease, mostly occurring in infants and children, leading to muscle wasting and weakness, and premature death. Due to new developments of multiple disease-modifying treatments within the last years, the interest of resea...

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Detalles Bibliográficos
Autores principales: Brandt, Maja, Johannsen, Lene, Inhestern, Laura, Bergelt, Corinna
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9295422/
https://www.ncbi.nlm.nih.gov/pubmed/35854387
http://dx.doi.org/10.1186/s13023-022-02407-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9295422/
https://www.ncbi.nlm.nih.gov/pubmed/35854387
http://dx.doi.org/10.1186/s13023-022-02407-5

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