A systematic review and integrative sequential explanatory narrative synthesis: The psychosocial impact of parenting a child with a lysosomal storage disorder

Lysosomal storage disorders are rare multiorgan, degenerative conditions requiring invasive treatment. Rare disorders pose unique challenges; therefore, exploring their impact is crucial for understanding family needs. This novel review aimed to understand the psychosocial outcomes for parents of ch...

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Detalles Bibliográficos
Autores principales: Hassall, Sadie, Smith, Debbie Michelle, Rust, Stewart, Wittkowski, Anja
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley & Sons, Inc. 2022
Materias:
Review Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9305282/
https://www.ncbi.nlm.nih.gov/pubmed/35124835
http://dx.doi.org/10.1002/jimd.12482

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9305282/
https://www.ncbi.nlm.nih.gov/pubmed/35124835
http://dx.doi.org/10.1002/jimd.12482

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