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Patient‐reported outcomes in autosomal inherited bleeding disorders: A systematic literature review

AIM: Currently, it is unknown which patient‐reported outcomes are important for patients with autosomal inherited bleeding disorders. Therefore, the purpose of this study is to systematically review the available literature assessing patient‐reported outcomes and their measurement methods in autosom...

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Detalles Bibliográficos
Autores principales: van Hoorn, Evelien S., Houwing, Maite E., Al Arashi, Wala, Leebeek, Frank W. G., Hazelzet, Jan A., Gouw, Samantha C., Schutgens, Roger E. G., Schols, Saskia E. M., Lingsma, Hester F., Cnossen, Marjon H.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9305757/
https://www.ncbi.nlm.nih.gov/pubmed/35040234
http://dx.doi.org/10.1111/hae.14492