Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene Therapy

PURPOSE: The hemophilia-specific health-related quality of life (HRQOL) questionnaire (Haemo-QOL-A) is validated for detecting QOL changes following standard therapy for hemophilia A, but has not been rigorously evaluated after gene therapy. This post hoc analysis evaluated the psychometric properti...

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Detalles Bibliográficos
Autores principales: Quinn, Jennifer, Delaney, Kathleen A, Wong, Wing Yen, Miesbach, Wolfgang, Bullinger, Monika
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove 2022
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9307866/
https://www.ncbi.nlm.nih.gov/pubmed/35879931
http://dx.doi.org/10.2147/PROM.S357555

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9307866/
https://www.ncbi.nlm.nih.gov/pubmed/35879931
http://dx.doi.org/10.2147/PROM.S357555

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