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Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene Therapy
PURPOSE: The hemophilia-specific health-related quality of life (HRQOL) questionnaire (Haemo-QOL-A) is validated for detecting QOL changes following standard therapy for hemophilia A, but has not been rigorously evaluated after gene therapy. This post hoc analysis evaluated the psychometric properti...
Autores principales: | Quinn, Jennifer, Delaney, Kathleen A, Wong, Wing Yen, Miesbach, Wolfgang, Bullinger, Monika |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Dove
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9307866/ https://www.ncbi.nlm.nih.gov/pubmed/35879931 http://dx.doi.org/10.2147/PROM.S357555 |
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