Burden and benefit—A mixed methods study of informal Amyotrophic Lateral Sclerosis caregivers in Ireland and the Netherlands

OBJECTIVES: Amyotrophic Lateral Sclerosis (ALS) is a systemic and terminal disorder of the central nervous system which causes paralysis of limbs, respiratory and bulbar muscles, impacting on physical, communication, cognitive and behavioural functioning. Informal caregivers play a key role in the c...

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Detalles Bibliográficos
Autores principales: Kennedy, Polly, Conroy, Éilís, Heverin, Mark, Leroi, Iracema, Beelen, Anita, van den Berg, Leonard, Hardiman, Orla, Galvin, Miriam
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9315024/
https://www.ncbi.nlm.nih.gov/pubmed/35362219
http://dx.doi.org/10.1002/gps.5704