Cargando…
Burden and benefit—A mixed methods study of informal Amyotrophic Lateral Sclerosis caregivers in Ireland and the Netherlands
OBJECTIVES: Amyotrophic Lateral Sclerosis (ALS) is a systemic and terminal disorder of the central nervous system which causes paralysis of limbs, respiratory and bulbar muscles, impacting on physical, communication, cognitive and behavioural functioning. Informal caregivers play a key role in the c...
Autores principales: | Kennedy, Polly, Conroy, Éilís, Heverin, Mark, Leroi, Iracema, Beelen, Anita, van den Berg, Leonard, Hardiman, Orla, Galvin, Miriam |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9315024/ https://www.ncbi.nlm.nih.gov/pubmed/35362219 http://dx.doi.org/10.1002/gps.5704 |
Ejemplares similares
-
Informal Caregivers in Amyotrophic Lateral Sclerosis: A Multi-Centre, Exploratory Study of Burden and Difficulties
por: Conroy, Éilís, et al.
Publicado: (2021) -
Care, burden and self-described positive aspects of caring in amyotrophic lateral sclerosis: an exploratory, longitudinal, mixed-methods study
por: Conroy, Éilís, et al.
Publicado: (2023) -
Group interventions for amyotrophic lateral sclerosis caregivers in Ireland: a randomised controlled trial protocol
por: Burke, Tom, et al.
Publicado: (2019) -
Prediction of caregiver quality of life in amyotrophic lateral sclerosis using explainable machine learning
por: Antoniadi, Anna Markella, et al.
Publicado: (2021) -
Prediction of caregiver burden in amyotrophic lateral sclerosis: a machine learning approach using random forests applied to a cohort study
por: Antoniadi, Anna Markella, et al.
Publicado: (2020)