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Moving from ‘fully’ to ‘appropriately’ informed consent in genomics: The PROMICE framework

Genomic sequencing technologies (GS) pose novel challenges not seen in older genetic technologies, making traditional standards for fully informed consent difficult or impossible to meet. This is due to factors including the complexity of the test and the broad range of results it may identify. Mean...

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Detalles Bibliográficos
Autores principales: Koplin, Julian J., Gyngell, Christopher, Savulescu, Julian, Vears, Danya F.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9321597/
https://www.ncbi.nlm.nih.gov/pubmed/35390218
http://dx.doi.org/10.1111/bioe.13027