Psychosocial Considerations for the Child with Rare Disease: A Review with Recommendations and Calls to Action

Rare diseases (RD) affect children, adolescents, and their families infrequently, but with a significant impact. The diagnostic odyssey undertaken as part of having a child with RD is immense and carries with it practical, emotional, relational, and contextual issues that are not well understood. Ch...

Descripción completa

Detalles Bibliográficos
Autores principales: Belzer, Leslee T., Wright, S. Margaret, Goodwin, Emily J., Singh, Mehar N., Carter, Brian S.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9325007/
https://www.ncbi.nlm.nih.gov/pubmed/35883917
http://dx.doi.org/10.3390/children9070933

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9325007/
https://www.ncbi.nlm.nih.gov/pubmed/35883917
http://dx.doi.org/10.3390/children9070933

Ejemplares similares