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Psychosocial Considerations for the Child with Rare Disease: A Review with Recommendations and Calls to Action
Rare diseases (RD) affect children, adolescents, and their families infrequently, but with a significant impact. The diagnostic odyssey undertaken as part of having a child with RD is immense and carries with it practical, emotional, relational, and contextual issues that are not well understood. Ch...
| Autores principales: | , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
MDPI
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9325007/ https://www.ncbi.nlm.nih.gov/pubmed/35883917 http://dx.doi.org/10.3390/children9070933 |