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Usability of NewSTEPs Data for Assessing the Characteristics of Infants with Newborn Screening Disorders

Most state newborn screening programs in the U.S. currently contribute case data to the Newborn Screening Technical Assistance and Evaluation Program (NewSTEPs). To assess the usability of these data for research, we examined the completeness of key variables, particularly race and ethnicity. Data i...

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Detalles Bibliográficos
Autores principales: Omari, Amel, Reeves, Sarah L., Prosser, Lisa A., Creary, Melissa S., Ahmad, Ayesha, Chua, Kao-Ping
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9326755/
https://www.ncbi.nlm.nih.gov/pubmed/35892472
http://dx.doi.org/10.3390/ijns8030042