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Usability of NewSTEPs Data for Assessing the Characteristics of Infants with Newborn Screening Disorders
Most state newborn screening programs in the U.S. currently contribute case data to the Newborn Screening Technical Assistance and Evaluation Program (NewSTEPs). To assess the usability of these data for research, we examined the completeness of key variables, particularly race and ethnicity. Data i...
Autores principales: | Omari, Amel, Reeves, Sarah L., Prosser, Lisa A., Creary, Melissa S., Ahmad, Ayesha, Chua, Kao-Ping |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9326755/ https://www.ncbi.nlm.nih.gov/pubmed/35892472 http://dx.doi.org/10.3390/ijns8030042 |
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