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Development and implementation of the AIDA International Registry for patients with Periodic Fever, Aphthous stomatitis, Pharyngitis, and cervical Adenitis syndrome

OBJECTIVE: Aim of this paper is to illustrate the methodology, design, and development of the AutoInflammatory Disease Alliance (AIDA) International Registry dedicated to patients with the Periodic Fever, Aphthous stomatitis, Pharyngitis, and cervical Adenitis (PFAPA) syndrome. METHODS: This is a ph...

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Detalles Bibliográficos
Autores principales: Della Casa, Francesca, Vitale, Antonio, Cattalini, Marco, La Torre, Francesco, Capozio, Giovanna, Del Giudice, Emanuela, Maggio, Maria Cristina, Conti, Giovanni, Alessio, Maria, Ogunjimi, Benson, Ragab, Gaafar, Emmi, Giacomo, Aragona, Emma, Giani, Teresa, Lopalco, Giuseppe, Parronchi, Paola, Shahram, Farhad, Verrecchia, Elena, Ricci, Francesca, Cardinale, Fabio, Di Noi, Silvia, Nuzzolese, Rossana, Lubrano, Riccardo, Patroniti, Serena, Naddei, Roberta, Sabato, Vito, Hussein, Mohamed A., Dotta, Laura, Mastrorilli, Violetta, Gentileschi, Stefano, Tufan, Abdurrahman, Caggiano, Valeria, Hegazy, Mohamed Tharwat, Sota, Jurgen, Almaghlouth, Ibrahim A., Ibrahim, Amr, Wiȩsik-Szewczyk, Ewa, Ozkiziltas, Burcugul, Grosso, Salvatore, Frassi, Micol, Tarsia, Maria, Pereira, Rosa Maria R., Taymour, Maged, Gaggiano, Carla, Colella, Sergio, Fabiani, Claudia, Morrone, Maria, Ruscitti, Piero, Frediani, Bruno, Spedicato, Veronica, Giardini, Henrique A. Mayrink, Balistreri, Alberto, Rigante, Donato, Cantarini, Luca
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9353299/
https://www.ncbi.nlm.nih.gov/pubmed/35935379
http://dx.doi.org/10.3389/fped.2022.930305