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An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model

PURPOSE: To examine the relations between patient-reported outcomes (PROs) within a conceptual model for adults with sickle cell disease (SCD) ages 18 – 45 years enrolled in the multi-site Sickle Cell Disease Implementation Consortium (SCDIC) registry. We hypothesized that patient and SCD-related fa...

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Detalles Bibliográficos
Autores principales: Treadwell, Marsha J., Mushiana, Swapandeep, Badawy, Sherif M., Preiss, Liliana, King, Allison A., Kroner, Barbara, Chen, Yumei, Glassberg, Jeffrey, Gordeuk, Victor, Shah, Nirmish, Snyder, Angela, Wun, Theodore
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9356962/
https://www.ncbi.nlm.nih.gov/pubmed/35445915
http://dx.doi.org/10.1007/s11136-022-03132-z