Patients’ and parents’ experiences during wound care of epidermolysis bullosa from a dyadic perspective: a survey study

BACKGROUND: Epidermolysis bullosa is a rare, often severe, genetic disorder characterized by fragility of the skin and mucous membranes. Despite the important role of parents during wound care, an essential factor in adapting to this disease, studies focusing on the parent–child relationship during...

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Detalles Bibliográficos
Autores principales: Mauritz, Petra J., Bolling, Marieke, Duipmans, José C., Hagedoorn, Mariët
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9375399/
https://www.ncbi.nlm.nih.gov/pubmed/35964099
http://dx.doi.org/10.1186/s13023-022-02462-y

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9375399/
https://www.ncbi.nlm.nih.gov/pubmed/35964099
http://dx.doi.org/10.1186/s13023-022-02462-y

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