Unmet need for patient involvement in rheumatology registries and observational studies: a mixed methods study

OBJECTIVE: The contribution of patient research partners (PRPs) is well established in EULAR recommendation development. However, in observational and registry studies, PRP involvement is not well-defined and remains limited. METHODS: Based on a round table discussion during the EULAR Registries and...

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Detalles Bibliográficos
Autores principales: Studenic, Paul, Sekhon, Mandeep, Carmona, Loreto, de Wit, Maarten, Nikiphorou, Elena
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2022
Materias:
Miscellaneous
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9396190/
https://www.ncbi.nlm.nih.gov/pubmed/35985793
http://dx.doi.org/10.1136/rmdopen-2022-002472

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9396190/
https://www.ncbi.nlm.nih.gov/pubmed/35985793
http://dx.doi.org/10.1136/rmdopen-2022-002472

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