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Unmet need for patient involvement in rheumatology registries and observational studies: a mixed methods study
OBJECTIVE: The contribution of patient research partners (PRPs) is well established in EULAR recommendation development. However, in observational and registry studies, PRP involvement is not well-defined and remains limited. METHODS: Based on a round table discussion during the EULAR Registries and...
| Autores principales: | , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BMJ Publishing Group
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9396190/ https://www.ncbi.nlm.nih.gov/pubmed/35985793 http://dx.doi.org/10.1136/rmdopen-2022-002472 |